MDSA Parent Projects
Even though Parent Project Muscular Dystrophy was founded by parents of children with Duchenne and Becker MD, and it’s mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by these dystrophies through research, advocacy, education and compassion, Maxine Strydom has extended this in South Africa to include all children who are affected with MD. contact Maxine Strydom, Tel: 083 662 2189, Email: firstname.lastname@example.org
Neuropsychiatric Disorders in Males With Duchenne Muscular Dystrophy.
New therapies for Duchenne muscular dystrophy: challenges, prospects and clinical trials Muscular dystrophies primarily affect skeletal muscle. Mutations in a large number of genes, mainly encoding cytoskeletal proteins, cause different forms of dystrophy that compromise patient mobility and quality of life, and in the most severe cases lead to complete paralysis and premature death. Although muscular dystrophies still lack an effective therapy, several novel strategies are entering or are ready to enter clinical trials. Here we review the main experimental strategies, namely drug, gene and cell therapies, outlining their goals and limitations. We also provide an update of ongoing or planned clinical trials based on these strategies.
How Duchenne Affects the Body
– Heart unction
– Cognition and Learning
– Current Options for Care and Management
Coordination of Care
– Physical Therapy
– Active Exercise
– Posture in Wheelchairs
Scoliosis and Surgery
Respiratory and Cardiac Care
– Respiratory Management
– Monitoring and Care of the Heart
Early Learning Strategies
Although we know, for some of you, this diagnosis is very new, while others have an intimate knowledge of the disease, we are here to help and continuously investigate ways to improve care for your son. We believe this CD to be an excellent source of information to help you help your son.
The CD is available now. To order your CD please email Maxine at email@example.com